Wednesday 1st October I left work early and went home to see my parents in Northamptonshire. I was feeling tired, spaced and a bit down. Frankly, I went home because I wanted a cuddle with Jaws, my cat. I can remember meeting my mum and not really being able to talk. As the evening went on I got progressively drowsier. My mum and dad helped me into bed, and then I had a seizure. I'm told that after I stopped fitting I hallucinated - I could see my eyes from the outside, I was a yellow snake with black splodges and Jaws had swapped my legs with fat ones.
By Thursday 2nd I was even drowsier and I started to lose sensation and movement in my legs and I ended up in A&E in Kettering in the afternoon. I'd got a decreased patella reflex and an increased plantar reflex on my right side, and my right foot had assumed a pretty freaky looking default position. I also absolutely could not pass urine - I was starting to look pregnant and was behaving like I was in labour from the pain. I was catheterised, and had 2 litres in there!
Friday 3rd October I had a CT scan of my head which showed fluid on the left side of my brain, but no clear cause for this. A brain and full spine MRI should be done soon.
On Saturday 4th I had a sudden burst of excruciating head pain, followed by a seizure. I woke up surrounded by an intensive care team, and an anaesthetist trying to intubate me, and was very quickly given some lovely sedatives.
Yesterday I woke up properly and today, 6th October, should be the day I get scanned and find out what's causing this. It's been a pretty difficult weekend; not that I've been aware of a lot of it. At first I felt as if nothing was being done because I'd lost a significant amount of my mobility and independence literally overnight, but then I became scared of my deterioration which seemed to happen by the minute. Luckily I've had close friends and family with me to keep me sane.
I'm sorry that most of you - family included - know nothing at this point, but my parents and I feel it's best to know the results of the MRI so we have a better idea of what to say to people instead of just "I've got fluid on my brain" with absolutely no idea of cause or prognosis until the MRI, and hopefully we'll know a bit more by the time I publish this.
I hope this blog will be a good way of keeping me sane whilst I find out what's going on, and also save me having to update all of you individually!
Love Emily x
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