I had some results from the 2nd lumbar puncture today. My CSF glucose is still low, but a bit higher than it was. I've got the same amount of blood, and still white blood cells too. Given that the glucose is improving it suggests the infection is on its way out, but as we don't know if that's a result of antibiotics or acyclovir or just the natural course of events then it makes sense to see out the 21 day infusion. So, for this reason, I'm saying AGAIN that I'll be off to theatre soon to have a Hickman line in (although I've actually made it onto a theatre list now, so it really should be imminent)!
On Friday I had a successful TWOC (trial without catheter, but I love saying TWOC), but over the weekend my central line infection meant I was pretty ill so I was re-catheterised. It makes sense to keep it in until I'm a bit better, but I feel a lot happier about having it knowing it's not the permanent measure it very easily could have been.
My mum has had to ask some people not to come to visit. I'm so sorry about this, but it's still changes from hour to hour if I'm well enough to see people - and I don't think it'd be any fun for either of us if you'd arranged to come over and I slept through the entire visit. I think it's (marginally) more polite to give you the heads up before you set off and take out a mortgage for the parking charges...
Anyway, I'm starting to feel like I'm making tiny amounts of progress. My good days are starting to outnumber my bad days, but I'm still not going to be out of here anytime soon. I've even been cracking on with my dissertation!
I know I end every post like this, but thanks again for all of your kindness to me, and to my family. It's immensely appreciated.
Love Emily x
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