In today's physio session I saw big improvements with muscle tone and movement in my thigh and knee. I'm no longer reliant on my hip to roll over or swing my leg forward; my knee is starting to bend and do some of that. My foot and ankle are still much the same, though. The session had to end early because I was feeling dizzy and sick through exhaustion - all I had done was a couple of stretches (mostly assisted by the physiotherapist) and then stood up. There's still a long way to go, which is why I think rehab is the right thing to do.
Yesterday I was untethered from my catheter bag, and taught how to intermittently catheterise myself. Basically, when I feel like I need a wee (I can feel that sensation now, yay!) I go to the toilet and instead of doing it the 'normal' way, I put a tube into my bladder. It took a while to get the hang of it (my medical friends are well aware of the difficulties of catheterising someone else, and that's with a good view +/- a torch...) but now I can do it with no problems. As "CSF infection" is the most specific diagnosis I have and without a more concrete one there's no predicting my prognosis (and even if a definite diagnosis were to be found, neurology is so unpredictable that we probably couldn't be certain of my prognosis anyway) then I don't know how long term a measure this is, but it's a small price to pay. What's bothering me more is my output is matching my excessive thirst and now I don't have the option of lazily watching my bag get fuller :(
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