Health wise there's been a few blips in the past few months. My neutrophil count (neutrophil = a type of white blood cell responsible for fighting infection) dipped to 0.6 (normal range is 2-8, <1 is the level you'd expect to see in an oncology patient undergoing chemotherapy) and as a result I've regularly been picking up colds, chest infections, ear infections, sore throats, UTIs and keratitis (cornea infections). I've been seeing haematology because of this and the working diagnosis is autoimmune neutropenia: in English, my body is making neutrophils but my immune system destroys them before they become effective. It's a condition which usually affects newborns and infants, but most outgrow it and is therefore incredibly rare in adults. Usually it's pretty benign and is more of a 'quirk' than an issue, but given that it's the probable cause of meningitis and sepsis then the possibility of G-CSF treatment (something I don't fully understand but involves encouraging my bone marrow to produce more white blood cells) has been floated.
Completely incidentally, whilst having blood tests for the neutropenia a fairly dangerously low haemoglobin (Hb) level even for a redhead vegetarian! I was offered a blood transfusion which I accepted, and was admitted to QMC for this, but then it turned out that my GP hadn't cross-matched any blood for me (checking my blood group against what the blood bank has in stock and ordering the right stuff) so it couldn't be done that day, although I was given an IV iron infusion which made me feel AMAZING! I've had a couple more since, and it seems to be keeping on top of things.
Love Emily x
P.s. It's been >1 year seizure free, so this happened:
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